Good Morning to you!
This post is going to be a bit of a ‘Debbie downer’ type of post, and for that I apologize, but I just want to be as real as I can be with you regarding my Crohn’s disease.
I had planned on writing this a few weeks ago, right when Gabriella turned 6 months old, but I kept putting it off and it’s kind of ironic that I did because boy did it change in a matter of a couple of weeks.
I was living the life before this past week. It was almost like I didn’t have the disease. I had a few rough days here & there, mainly with the urgency to go to the bathroom immediately, but nothing too crazy.
Before I got pregnant with Gabriella I couldn’t remember the last time that I was able to run outside. I always ran on the treadmill so that I was near a bathroom at all times.
Then I got pregnant & life changed. My Crohn’s pretty much went into ‘remission.’ I couldn’t believe it, I didn’t know what it was like to live life Crohn’s free.
I was able to run outside, eat ‘normal’ foods when I wanted & not have to know where every bathroom was within a two foot radius…well, other than the normal pregnant woman’s need to pee every five seconds. Haha!
During my pregnancy I always wondered how my Crohn’s would do once I gave birth. Would it flare up, like some women experience? Would it stay the way it has been during my pregnancy, which was pretty much remission? Or would I experience a ‘milder’ form of the disease?
November 5th, 2012 I got my answer. My little bundle of love arrived.
The best day of my life.
I honestly was on pins & needles regarding my Crohn’s after giving birth. I really felt like at ANY second it would flare back up. But as time went on, and I didn’t have any symptoms (other than a few here & there), I figured I may be in the clear.
Well, you know what assuming does…
Last week it took a turn for the worse. The VERY worst. One night it just hit me. I could NOT stay out of the bathroom. I was either up feeding Gabriella, or in the bathroom…ALL NIGHT LONG. It was awful. Completely draining.
I was hoping it might have been something that I ate, and that the issues would go away. Not the case. For the past week I have been in the bathroom more than I ever want to talk about.
I have been completely exhausted. My body is not absorbing ANY food. The second I eat anything, even something as plain as a piece of toast, I end up in the bathroom about five minutes after I finish. Gross.
The other thing that is worrisome is my weight. It keeps going down…it’s getting BAD. I know, you are probably thinking, ‘Cry me a freaking river Holly. You poor thing.’ But it IS a HUGE issue now. I lost three pounds in two days. I look like I need to eat. It’s NOT the look I’m going for.
This is me (& Lea 🙂 ) right before I got pregnant:
I actually liked my weight at the point in life….which for me had NEVER happened before. I always had issues with body image (I thought stick thin was the way to go), so to actually be content with my weight was a shock.
Now I am smaller than the picture above, which was ok, but now I am quite a bit smaller. Seeing bones is never attractive. This is not by choice, but just because my body isn’t absorbing any nutrients…or any food at all.
The other thing is the exhaustion. Never have I ever really ‘needed’ help with Gabriella since she has been born. Of course I appreciate any help, but right now I am almost to where I NEED the help. Another reason I wish we had family close by. Taking care of a 6.5 month old while being in the bathroom half of the day is not ideal.
I feel bad for G. I don’t want her to feel like I’m not paying her enough attention.
Another thing is the running. I LOVE running. It is my sanity, and MY time. Yes I go with Gabriella daily, but she plays with toys in the BOB while I run & typically takes her morning nap in the stroller. It gives us a chance to get out of the house, and I am able to get my exercise in. I usually run anywhere between 6 & 10 miles each day. But yesterday I ran three miles & thought I was going to die. I couldn’t believe how DONE I felt when I finished. I felt like I just ran a marathon. Then it hit me ‘DUH!!! You have no fuel in your body to get you through your run. HELLO!’
It’s amazing how much better you feel with some food in your body! And it was scary after that run, to see how much my body was suffering from the symptoms from my Crohn’s.
Once I got home, I called the doctor to see if they had any appointments available. Thankfully they were able to squeeze me in for an ‘emergency appointment’ yesterday afternoon, specifically for patients dealing with a sudden flare up. Like any other doctor appointment, the first thing they do is weigh you & take your blood pressure. Well, the FIRST thing the doctor says when he walks in is ‘You can’t lose anymore weight.’ Which I knew. So we made a plan.
Since I am breastfeeding, my options on the medications that I can take are limited. But he did change my medication from Delzicol to Apriso, which is another form of Mesalamine and it is safe for breastfeeding.
Next up the plan for not losing anymore weight: add protein shakes, or nutrition shakes to my diet. He said 2-3 a day. Eek! But it’s manageable and NEEDS to happen. I immediately went out and bought some shakes as soon as I left the office.
And finally they sent me to a lab to pick up some things so that they can run a bunch of tests to find out if there is some sort of another infection going on, or if it is just my Crohn’s flaring.
He also reminded me that if I am feeling exhausted, it’s probably not the best idea to go out for a long run. (I know, DUH!) He said sometimes a little rest does the body good. And obviously my body is telling me to rest with the feelings of constantly being tired.
I go for a follow up appointment in two weeks. At that appointment we can make our next plan. But we are hoping that the medication starts to work wonders.
If you don’t mind, please say a little prayer that we can find something that works to get this disease back in ‘remission.’ Also anyone want to come & help me take care of a 6.5 month old for a few days?!
She’s REALLY cute & I promise to pay you in baked goods.
If you made it through this entire post, THANK YOU! I hope it didn’t bore you too much.
Anyone else out there experiencing issues with Crohn’s? What medication or supplements, if any, are you on? Do you have certain things that trigger your disease?